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Developmental Disabilities Awareness Month: Expanding Understanding, Challenging Assumptions

Developmental Disabilities Awareness Month, observed every March, was established in 1987 through a presidential proclamation aimed at increasing public understanding of developmental disabilities and improving access to services and supports. The month serves as a national reminder of the ongoing need to address disparities, expand opportunities, and challenge outdated beliefs about disability. Over the years, it has evolved into a broader effort to promote inclusion, highlight systemic barriers, and strengthen advocacy for individuals with developmental disabilities and their families.

As a behavioral health organization, Horizon acknowledges the importance of understanding and recognizing the impact developmental disabilities and the disparities individuals face can have on their wellbeing.

Defining Developmental Disabilities

Developmental disabilities are a diverse group of lifelong conditions that begin during the developmental period and may affect learning, communication, mobility, or daily living. It’s essential to remember that developmental disabilities are not deficits in human worth, they are part of the natural diversity of human experience. Recognizing this helps shift the conversation from limitation to possibility, and from stigma to understanding.

Understanding Ableism

Ableism refers to the attitudes, behaviors, and systems that devalue or limit the rights and opportunities of people with disabilities. It often appears in subtle ways: assuming someone’s capabilities, speaking to caregivers instead of directly to the individual, or designing environments that exclude by default. These everyday behaviors can reinforce barriers and diminish autonomy, even when unintentional.

Challenging ableism means questioning assumptions, listening deeply, and committing to practices that affirm dignity and independence.

Inclusion as Belonging

True inclusion goes beyond physical access. It’s about belonging—creating environments where people with developmental disabilities can participate fully, contribute meaningfully, and be valued for who they are. This requires moving away from the idea of “fitting people into systems” and instead reshaping systems so that everyone can thrive.

Intersectionality: Understanding the Whole Person

Experiences of disability never exist in isolation. People’s lives are shaped by the intersections of race, gender, culture, language, socioeconomic status, and other identities. These overlapping identities can intensify barriers or create unique strengths and support networks. For example:

  • A Black child with a developmental disability may face both racial bias and ableism in school.
  • Families who speak languages other than English may struggle to access evaluations or services when interpreters or translated materials are unavailable.
  • A family with limited income may encounter long waitlists, fewer provider options, or challenges accessing consistent care.
  • In some cultures, disability may be stigmatized or misunderstood, making it harder for individuals or families to seek support.

Recognizing intersectionality helps us understand why experiences vary so widely and why equity requires more than a one size fits all approach.

The Power of Language

Language shapes how we see one another. When talking about disability, two common approaches—person first and identity first language—reflect different ways people relate to their own experiences.

  • Person first language places the individual before the disability, such as “a person with a developmental disability.” This approach emphasizes that disability is just one aspect of a person’s life.
  • Identity first language centers the disability as an important and meaningful part of identity—for example, “an autistic person.” Many people prefer this because it affirms pride, community, and the idea that disability is not something to distance from.

The most respectful approach is simple: ask people how they want to be identified and honor the language that feels true to them.

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Horizon’s Commitment

At Horizon, we remain committed to fostering spaces where individuals of all abilities are welcomed, valued, and have a sense of belonging. Learn more about our Stronger Together commitments.

If you or a loved one is struggling, Horizon is here to help. Call today at 716.831.1800 to connect with our trained professionals.